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Perhaps the oil could prevent the disease ever appearing. (His mother died of lung cancer in 2002.) Despite research dead-ends, the horror of watching their son's health decline and being surrounded by skeptics (including the coordinators of the support group they attend), they persist until they finally hit upon a possible therapy. Tests can identify boys with the gene, and the oil gives them a hugely improved chance of escaping the horrific disease.  |  Roger Ebert of the Chicago Sun Times gave the film four out of four stars and called it an "immensely moving and challenging movie". He died on May 30, 2008, one day after his 30th birthday. However, when his parents relocate back to the United States, he begins to show signs of neurological problems (such as falling, loss of hearing, tantrums, etc.). This video was created with WeVideo. Augusto Daniel Odone and Michaela Teresa Murphy Odone are the parents of Lorenzo Oden , They became famous for discovering a treatment using Lornzo’s oil, for their son's incurable illness. Lorenzo suffered from Adrenoleucodystrophy (ALD), a genetic disease that progressively destroys the brain of young boys. Within a year children are paralysed, blind, unable to speak. Oscar® nominee Nick Nolte and Academy Award® winner Susan Sarandon star in this powerful and unforgettable drama based on a true story. Doctors all over the world stopped prescribing the oil. This treatment proves successful in normalizing the accumulation of the very long chain fatty acids (which had been causing their son's steady decline), as measured in blood levels. He invited all the world experts to a conference to discuss the research, and it was at the conference that he first found a glimmer of hope. Add to Wishlist. He said: 'Don't bother, you won't understand them'.". Well, it's a death sentence. "So I asked the doctor if I could read the medical papers. Lorenzo's Oil is a 1992 American drama film co-written and directed by George Miller. Augusto Odone, inventor of ‘Lorenzo’s Oil’, dies at 80 These are the English versions of Lorenzo’s oil book. Nick Nolte and Susan Sarandon star in this powerful drama based on the true story of one family's extraordinary quest to save their son after he's diagnosed with a rare terminal disease. The tale begins in 1984 when Lorenzo, then age 5, is diagnosed with the disease. Watch Lorenzo's Oil. After diagnosing 5-year-old Lorenzo Odone's condition as an extremly rare degeneration of the nervous system known as Adrenoleukodystrophy (ALD), the doctors tell his parents that there is nothing that can be done, and that he has only two years to live. Troubled waters for 'Lorenzo's Oil' Fact-based movie took too much license, real characters contend Jean Marbella THE BALTIMORE SUN It … The movie Lorenzo’s Oil is based on a true story. Susan Sarandon was nominated for Best Actress in a Drama at the 50th Golden Globe Awards. [9], Hugo Moser, on whom the character of Professor Nikolais was based, called the film's portrayal of that character "an abomination". It takes a heartbreaking story and pushes it to the limit, showing us the lengths of courage and imagination that people can summon when they must. And Augusto Odone? Now, as BBC television documentary series Medical Mysteries reports, a 10 year study into the effects of Lorenzo's Oil has come up with surprising results. 1993. There is no treatment. "Lorenzo's Oil" is a movie about the triumph of human spirit and dogged determination. Very little is known about how ALD is inherited. Over the years, the treatment has gained tremendous recognition thanks to ongoing scientific research, the Myelin Project, and the 1992 feature film, Lorenzo's Oil. The movie ends with scenes of ALD patients who were treated with Lorenzo's Oil earlier in the course of their disease. 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